This week has been full of decision making and un-making decisions. Marlin and I traveled to St. Louis to consult with a radiation oncologist and follow up with my surgeon (6 month check up). I wanted the specialists at Barnes-Jewish Hospital to review my case again, since the chemotherapy is essentially complete. The recommendation from the radiation doctors was to do a special type of radiation called intensity modulated radiation therapy (IMRT) because it would be less damaging to my heart. Since my cancer was on the left side and I also received Adriamycin (chemo drug) which damages the heart, the physicians believed that conventional radiation therapy would not be safe for my heart. They did explain how radiation therapy would be done in Pittsburg, should I decide to have radiation locally. After their consultation, I was comfortable with having radiation therapy done in Pittsburg, since many women in America receive "conventional" radiation therapy without problems.
I had a followup visit with Dr. M, the surgeon, that went very well - return in another 6 months.
Thursday, I went to Pittsburg for an appointment with the radiation doctor at Mt. Carmel. He had changed the radiation treatment plan from what was explained to me by the doctors in St. Louis. Dr. J. was very re-assuring that what he planned was appropriate and would be safer for my heart. The plan he proported omitted radiation of my breast bone area - where the internal mammary glands are. The physicians in St. Louis were very adamant that the internal mammary glands be radiated. I was very confused, now, with the differing plans. I was doubtful, but agreed to have a first treatment.
Today, I consulted for the first time with Dr. Mathew, a medical oncologist. He is the doctor to replace the first medical oncologist I had (Dr. River). Dr. M. was very helpful. Marlin and I knew he had spent time reviewing my case, as he asked very pointed questions and discussed the radiation treatment with me. He was concerned that Dr. J. was not including the internal mammary glands in the radiation field and telephoned him, personally, to advocate for me. Dr. J. refused to change the plan. After much discussion of options with Dr. Mathew, Marlin and I agreed that the best option for me - with the very best chance of success - is for me to go to St. Louis for radiation treatment. I would have to stay in St. Louis for daily treatments for about 7 weeks.
I have been praying for wisdom in decision making. I have been praying for God's guidance for my physicians. I believe God has provided the path for me to continue my treatment. My devotions the last week have been chapters in Matthew of Jesus' healing (Chapters 8 and 9). By God's grace, he has provided guidance to me.
Keep me in your prayers -
Love to all -
Ellen
Friday, October 24, 2008
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